What is Agoraphobia? How is it Treated?

Published By Justin Baksh, LMHC, MCAP
July 12, 2024

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Although often portrayed in the media one-dimensionally as being afraid of or unable to leave the house, agoraphobia encompasses more than this. At its core, agoraphobia is the fear of being in situations where escape may be difficult or embarrassing, or help might not be available in the event of panic symptoms. The fear is out of proportion to the actual situation, lasts generally six months or more, and causes significant problems in functioning.

What is Agoraphobia?

“The term is derived from the Greek word agora, meaning ‘place of assembly,’ ‘open space,’ or ‘marketplace’, and from the English word phobia, meaning ‘fear.’

Many patients with agoraphobia are uncomfortable in unfamiliar places or in crowded or open areas, such as shops, markets, restaurants, and theatres, where they may inadvertently enter into situations that they perceive to be beyond their control.

Although the relationship between agoraphobia and panic disorder is unclear, many agoraphobic patients also experience panic attacks. These individuals often are afraid of having a panic attack in a public place, which they perceive as embarrassing, or of having a panic attack in a location distant from their physician or medical clinic or where effecting medical care might be difficult.

As a result, many have difficulty driving long distances, crossing bridges, and driving through tunnels. At its most severe, agoraphobia can cause the sufferer to become housebound.”

-Agoraphobia definition, Britannica

In terms of clinical diagnosis, agoraphobia sufferers experience intense anxiety and fear in two or more of the following situations:

  • Using public transportation
  • Being in open spaces
  • Being in enclosed places
  • Standing in line or being in a crowd
  • Being outside the home alone

The fear experienced must be out of proportion to the event itself and cause a serious disruption in the ability to function. Those affected may be able to knuckle through the anxiety to endure the situations they fear. They may also seek a companion to help calm them, or even shun the situations entirely. If agoraphobia is not properly treated, however, it can progress to the point where the sufferer is unable to leave the house.

What is Life Like with Agoraphobia?

“For me, agoraphobia makes me feel like a wounded animal or a scared animal. Like a deer.

I have to constantly keep myself aware of my surroundings, constantly keep watch for threats and want to run away whenever someone or something unknown gets close to me. I want to stay close to my family at all times or at least know they are near enough to me that I can run back to them whenever I have trouble. I also don’t like showing people how this affects me, much like a wild animal with a wound who tries to act normal around a predator so they don’t notice and try to kill them.”

-ChibiChick25, What Does Agoraphobic Feel Like to You? Reddit.com

To further understand what it’s like to live with this condition, let’s take a look at Pamela.

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A Panic Attack Becomes Something More

A woman in her early 40s, Pamela has lived with agoraphobia for several years. Her journey with agoraphobia began unexpectedly. She was at a large shopping mall when she experienced her first panic attack. Surrounded by people, Pamela felt an overwhelming sense of dread, her heart raced uncontrollably, and she feared she might faint or lose control. This experience was so distressing that Pamela started to avoid any situation that might trigger a similar feeling. Over time, her world became smaller as she avoided more places and activities.

Isolation

Pamela’s agoraphobia has led her to work from home, avoid public transportation, and limit her interactions outside her immediate living environment. Social gatherings, family events, and even routine activities like grocery shopping became sources of intense anxiety and fear. This isolation leaves Pamela feeling lonely and depressed and raises her anxiety. Feelings of alienation and despair arise from her lack of a support network or social interaction. She often finds herself trapped in a cycle of negative thoughts and feelings, which can amplify her agoraphobia symptoms and contribute to the development of other mental health issues, such as major depressive disorder.

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Emotional Burden

The emotional toll of isolation is significant. Pamela experiences intense feelings of sadness, worthlessness, and guilt, believing she is a burden to her loved ones. This emotional distress can further erode her self-esteem and sense of purpose, making it even more challenging to seek out help or engage in treatment.

woman-in-bed-with-arms-on-folded-legs-and-one-hand-on-her-head-resting-on-the-other-arm-and-hand-what-is-agoraphobia-iMind-Mental-Health-Solutions

Deteriorating Physical Health

Isolation affects Pamela’s physical health as well. Not getting enough outdoor time and physical activity can lead to a less active lifestyle. This inactivity can result in gaining weight, developing heart-related health problems, and an overall decrease in fitness levels. Additionally, the stress associated with agoraphobia and isolation can exacerbate chronic conditions, interfere with sleep patterns, and weaken the immune system, making her more susceptible to illness.

Cognitive Challenges

Pamela’s ability to think clearly is also affected. Ongoing isolation can result in challenges with focus, memory, and making decisions. These cognitive challenges make it even harder for Pamela to engage in treatment or seek social connections, perpetuating the cycle of isolation.

What Causes Agoraphobia?

Agoraphobia is a type of anxiety disorder. It has been intricately linked with panic disorder, suggesting that severe, unexpected episodes of fear might escalate into agoraphobia for some individuals. About one in three people experiencing panic disorder might see their condition progress to agoraphobia, indicating a significant connection between these two disorders. A previous history of mental illness, traumatic childhood experiences, alcohol or drug abuse, stressful life events, and even being in a dysfunctional relationship can be triggers for panic disorder.

Agoraphobia can also emerge independently, without prior panic disorder episodes. In these cases, certain phobias can trigger agoraphobia, such as fear of developing a debilitating illness from the outside world or fear of doing something embarrassing in a crowded venue.

How Many People have Agoraphobia?

An estimated 1.7% of U.S. adults have agoraphobia in the past year, with prevalence rates being nearly equal between females and males. The average age at onset is 17, putting the mean age of diagnosis at mid-to-late 20s. Most cases of agoraphobia have emerged by the age of 35.

Symptoms of Agoraphobia

Agoraphobia’s symptoms often overlap with those of panic disorder, social anxiety disorder, and specific phobias, leading to potential misdiagnosis. For instance, panic disorder involves sudden episodes of intense fear, which can be confused with agoraphobia’s panic-like symptoms in feared environments. Social anxiety disorder, characterized by extreme fear in social situations, might also be mistaken for agoraphobia if a person avoids places where crowds gather.

Agoraphobia manifests physically, cognitively and behaviorally. Physical symptoms include:

Agoraphobia Symptoms

Physical Symptoms of Agoraphobia

  • Chills
  • Chest Pain
  • Choking
  • Dizziness
  • Feeling Faint or Disoriented
  • Feeling Flushed
  • GI issues (Diarrhea/Nausea/Vomiting)
  • Hyperventilating
  • Overall feeling of unease or being ill
  • Rapid/Racing Heartbeat
  • Shortness of Breath
  • Sweating/Heat Flushes
  • Tinnitus (Ringing in the Ears)
  • Trembling
  • Trouble Swallowing

Behavioral Symptoms of Agoraphobia

  • Avoiding situations which may trigger panic attacks
  • Feeling extreme fear and anxiety in situations they find uncomfortable (riding on public transit, leaving the house, et al.)
  • Needing a trusted companion on trips outside the home
  • Not leaving the house for long stretches of time
  • Staying close to home (avoiding traveling too far)

Cognitive Symptoms of Agoraphobia

  • Fear of being alone in your home
  • Feeling dependent on others to the point you cannot survive without them
  • General feeling of dread, doom, or anxiety
  • Being afraid of doing something “stupid” or lose control in a public place
  • Thinking that you will have a panic attack that will embarrass you or be life-threatening, and/or you won’t be able to escape the situation
  • Wondering whether you are losing your sanity

Which Treatments Work for Agoraphobia?

“I was suffering with agoraphobia for months. It got to such a stage where I was to afraid to leave my own bedroom. It took me months of consistent exposure work to pull myself out of that spot and now I feel pretty much cured. I still have anxious thoughts about going places, but I don’t let these thoughts control my actions.

Now something I’ve realized is, the hard truth of the matter is, agoraphobia can only be beaten by being brave and actively putting yourself in uncomfortable situations. You’re not going to suddenly wake up one day feeling cured. It doesn’t have to be massive, you don’t have to throw yourself into a city straight away… you build up to that point through small steps, like going through short walks. Chances are, your going to feel pretty bad on your first exposures, but every exposure is a success. It’s about learning and realizing that your uncomfortable symptoms don’t last forever, and how every little exposure, no matter how small, is chipping away at that beast.

Also keep in mind you’re not going to be cured in a week of doing exposures. It personally took me several months to get to the point I am at now. Recovery is messy, but it feels so good when you feel it clicking together.

Believe me, I know how horrible those feelings feel, but they don’t last forever and they certainly will not kill you.”

-Minimum_Squash_8258, You Cannot Beat Agoraphobia by Staying at Home, the Only Way to Beat it is Through Exposures, Reddit.com

Agoraphobia treatment often involves cognitive-behavioral therapy. CBT for agoraphobia is the process of understanding and altering negative thought patterns that make the fear and avoidance behaviors associated with the condition worse. It teaches individuals to confront their fears in a controlled and gradual way, through a process called exposure therapy. This helps reduce the panic and anxiety experienced in feared situations, enabling individuals to gradually face places or situations they have been avoiding.

What’s the Best Medication for Agoraphobia?

Physicians will sometimes recommended an SSRI medication to help balance the brain’s neurotransmitter levels. SSRIs assist in managing agoraphobia by elevating the level of serotonin, a crucial neurotransmitter in the brain. By preventing serotonin from being reabsorbed back into the neurons, its availability is increased. This allows for better neuron communication, which helps alleviate symptoms associated with depression and anxiety disorders, including agoraphobia. The reduction in symptoms makes it easier to engage in and benefit from therapy.

Can You Get Disability for Agoraphobia?

People with agoraphobia might qualify for Social Security Disability benefits if they adhere to the Social Security Administration’s specified criteria. This includes demonstrating significant limitations in daily functioning due to the disorder. For a thorough understanding of these criteria and the process to apply, visit the Social Security Administration’s website at https://www.ssa.gov.

Can Agoraphobia be Cured?

Agoraphobia is often a long-term challenge, and the DSM-5 notes its tendency to persist. Without intervention, the disorder can lead to severe limitations, including becoming home-bound. Success in managing symptoms significantly increases with timely and suitable therapy. Early treatment is crucial in improving outcomes, especially since untreated, remission rates are low, around 10 percent.

With treatment, however, the outlook is much brighter. In one study, 74 percent of patients treated with CBT’s exposure therapy became free of panic attacks, and nearly all (96 percent) who experienced relief were of still symptom-free at two years. At five years, nearly 78 percent were symptom-free and 67 percent were at seven years.

The presence of additional mental health conditions can complicate agoraphobia’s prognosis, so it is vital to address any coexisting conditions in a treatment plan.

  • Balaram, K., & Marwaha, R. (2024). Agoraphobia. PubMed; StatPearls Publishing.
  • Fava, G. A., Zielezny, M., Savron, G., & Grandi, S. (1995). Long-Term Effects of Behavioural Treatment for Panic Disorder with Agoraphobia. British Journal of Psychiatry166(1), 87–92.
  • National Institute of Mental Health. (2021). NIMH» agoraphobia. Www.nimh.nih.gov.
  • NHS. (2021, February 12). Causes – Agoraphobia. Nhs.uk.
  • ‌Perugi, G., Frare, F., & Toni, C. (2007). Diagnosis and Treatment of Agoraphobia with Panic Disorder. CNS Drugs21(9), 741–764.

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